Introduction & Background
In 2011 there were 1.6 million people in England with a diagnosis of cancer. With the improvements in early diagnosis and treatment approach, it is anticipated that, by 2030, this number will increase to 3 million as more people will be living with, and beyond, cancer.
The anticipated impact that this will have on hospital cancers services and the care of the patients within it is such that, in 2011 the Anglia Cancer Network launched the Transforming Community Cancer Care Programme (TCCC) Programme (which was subsequently adopted in April 2013 by the new Strategic Clinical Network (SCN) as one of the SCN’s top 3 Work Programme priorities).
This Programme comprises a series of 7 pilots across Anglia, the objectives and evaluation of which focus on a detailed study of the feasibility and cost and patient benefits of transferring the care of cancer patients, throughout the patients’ pathway, from hospital-based care to a community setting.
The 7 pilots are based in Bedfordshire, Cambridgeshire, Great Yarmouth and Waveney, Huntingdon, Peterborough, Suffolk and West Norfolk and each will run for a 2-year period, with the plan being that these pilot models will be broadened and implemented as a standard service for cancer patients.
The TCCC Programme Governance Structure
The Programme has a robust governance structure, with the following groups reporting into the TCCC Programme Board on a quarterly basis:
- The 7 subgroup pilots
- The Network Project Management Team
- The Network Primary Care Cancer Nurse (PCCN) Team
- The Primary Care Practice Nurse Training Programme
- The Evaluation Group
The TCCC Programme Board, in turn, reports into the Network Strategic Clinical Network (SCN) Forum.
The governance structure will be uploaded shortly.
Patient Involvement in the Development of the Programme
This transformational programme has been designed and developed with the 10 elements of the Anglia Patient Charter at its centre, namely that patients:
- Want to be diagnosed early
- Should be treated with dignity and compassion
- Should all have a “Key Worker”
- Want services close to their home community
- Would like written information about our cancer
- Need practical and emotional support
- Need help for carers
- Want access to appropriate research trials
- Want patient involvement in decisions on cancer services, and
- Want to die well
The above will also form the basis for Programme progress monitoring and the overall programme evaluation.
- Chair and Network Lead: Tonia Dawson
- Network Project Manager: Gill Schram
- Programme Support: Liz Wilson
- Bedford Pilot Lead: Claire Holmes
- Cambridgeshire Pilot Lead: Liz Webb
- Gt Yarmouth & Waveney Pilot Lead: Elaine James
- Huntingdon Pilot Lead: Lynda Hall
- Peterborough Pilot Lead: Lyndsay Carter
- Suffolk Pilot Lead: Lisa Parrish and Martin Bate
- West Norfolk Pilot Lead: Hanne Lene Schierff